In the last years I have been worried about endometriosis but when I tried to talk about it with my old doctors they cut me off saying that I had no reason to believe I had it. I didn’t insist because I was too ashamed to talk about it anyway. The thing is, I have gone through plenty of website discussing endometriosis and I believe I have reasons to worry.
After so many failed cycles, I finally decided it was time to talk. I own a big thank you to a friend who was kind enough to share her own I-may-die-of-shame experience and gave me the final push I needed. Really, thank you!
This doctor finally listened. Or rather, he read: since I was too ashamed to talk about glamorous symptoms , I ended up writing a list and handing it to him. My list of endometriosis symptoms is as follows:
- Painful, heavy and very irregular periods, often with clots
- Pain in the lower abdomen, pelvis and lower back
- Diarrhea during periods
- Painful bowel movements right before and during periods
- Occasional bleeding from back passage
- Often cramps around back passage right before periods (so strong I generally cannot move)
- ‘Spotting’ or bleeding between periods
- Pain during sex in some positions
- Infertility (of course!)
Sorry I know this is TMI but I am writing this down so if others have the same and read this list, they know they are not alone.
The gynecologist agrees with me that I may have endometriosis and told me to get an MRI. As IVF is the solution for endometriosis and I am already doing it, he thinks that it’s not worth doing a laparoscopy for now.
Any thoughts from endometriosis experts and sufferers?
Other than this endometriosis discussion, we’ll go ahead with another frozen transfer. I’ll start the meds to induce my period as soon as I feel ready and I think the FET will be sometime between late September and early October. After all the failures this year, I can’t feel enthusiastic about it. But we can only keep trying..